+ Resolve Article
+ Follow Us
Follow on FacebookFollow on Facebook
Follow on TwitterFollow on Twitter

+ Translate
+ Subscribe to Site Feed
GeoScience Most Shared ContentMost Shared Content

'I don't want to hurt him.' Parents' experiences of learning to administer clotting factor to their child

, : 'I don't want to hurt him.' Parents' experiences of learning to administer clotting factor to their child. Haemophilia 19(2): 206-211

To explore the experiences and educational needs of parents learning to use an Implanted Central Venous Access Device (IVAD) to administer clotting factor to their child with haemophilia. Parents of children with haemophilia who had learnt to administer clotting factor via IVAD attended focus groups to discuss their experiences of the learning process. Data were transcribed and analyzed thematically. Parents described distress and trauma in dealing with the diagnosis and treatment of their child's haemophilia. It was within this context that parents began the IVAD education process. Four major themes emerged from the data: dealing with fear and anxiety; a supportive learning environment; establishing a ritual and empowerment and liberation. Parents identified a supportive learning environment as their critical need rather than a specific learning process. In addition, the concept of ritual emerged both as a mechanism for increasing the child's comfort with the procedure and as a valuable learning tool for their parents. This study highlights the importance of consulting consumers to understand their experience of illness and their educational needs. Patient and family education programs should not be limited to the provision of information, but must establish and incorporate the needs of the learner.


PMID: 23039058

DOI: 10.1111/hae.12030

Other references

Caselli R.J.; Windebank A.J.; Petersen R.C.; Okazaki H.; Kokmen E.; Iverson R., 1991: Rapidly progressive aphasic dementia and motor neuron disease mnd six new cases of a distinctive clinical syndrome. Neurology 41(3 SUPPL 1): 176

Easterday, W.R.; Van Ert, M.N.; Zanecki, S.; Keim, P., 2005: Specific detection of bacillus anthracis using a TaqMan mismatch amplification mutation assay. Single nucleotide polymorphisms (SNPs) are increasingly recognized as important diagnostic markers for the detection and differentiation of Bacillus anthracis. The use of SNP markers for identifying B. anthracis DNA in environmental samples contai...

Krzyznowska-Laboz, U., 1980: The organization and organizational activity of the Polish Nurses' Association. Pielegniarka i Polozna: 10-12

Mitchell, J.; Moss, H.C., 1948: The soils of the Canadian section of the Great Plains. The authors define the Canadian section of the Great Plains on the basis of common geological and physiographical features. The area discussed extends from the w. side of Manitoba to the foothills of the Rocky Mts., and from the 49th parallel nort...

Ahuja, S.; Dunn, M., 1963: The Vectorcardiogram... ... As An Aid In The Diagnosis Of Myocardial Infarction. Journal of the Kansas Medical Society 64: 491-499

Taylor, M.I.; Turner, G.F.; Robinson, R.L.; Stauffer, J.R.Jr, 1998: Sexual selection, parasites and bower height shown in an African bower-building cichlid from Lake Malawi, Africa. Journal of Fish Biology 53(SUPPL A): 444, Dec

Blazek, J.; Vavra, R., 2007: Fruit quality in some progenies of plum varieties with tolerance to PPV. Thirty plum progenies, comprising a total number of 817 seedlings, were obtained at Holovousy by crossing the parent cultivars previously evaluated as tolerant to Plum pox virus (PPV). These were evaluated between 1998 and 2003 for some characters...

Wang, J-Shyan.; Liu, H-Chun., 2008: Systemic hypoxia enhances bactericidal activities of human polymorphonuclear leuocytes. ROS (reactive oxygen species) generated by hypoxia facilitate the vascular inflammatory response, but whether systemic hypoxia influences leucocyte bactericidal activity by modulating circulatory redox status remains unclear. The present study elu...

Chen, L.; Yang, P.; Wen, F.; Zhou, H.; Huang, X., 2002: Fundus fluorescein and indocyanine green angiographic study of Behcet's disease and Vogt-Koyanagi-Harada syndrome. To study the choroidal and retinal changes in Behcet's disease and Vogt-Koyanagi-Harada syndrome (VKHS) using indocyanine green angiography (ICGA) and fundus fluorescein angiography (FFA). Seventeen cases (27 eyes) of Behcet's disease an...

Ben Efraim, S., 1967: Immune response to synthetic antigens in inbred strains in inbred strains of guinea pigs. The study of the immunogenecity of some linear and multichain syn-thetic polypeptides in the inbred strains 2 and 13 of guinea pig led to their division into 4 categories: immunogenic in both strains: linear copolymers of tyrosine, glutamic acid a...