geoscience.net logo
+ Resolve Article
+ Follow Us
Follow on FacebookFollow on Facebook
Follow on TwitterFollow on Twitter

+ Translate
+ Subscribe to Site Feed
GeoScience Most Shared ContentMost Shared Content

How Not to Tell Parents About Their Childa s New Diagnosis of Congenital Heart Disease An Internet Survey of 841 Parents


, : How Not to Tell Parents About Their Childa s New Diagnosis of Congenital Heart Disease An Internet Survey of 841 Parents.

An online survey for parents of children with congenital heart disease (CHD) was developed to study the perceptions and experiences of parents when receiving the diagnosis. The survey was distributed to online support groups. A total of 841 responses from parents of children with CHD in the United States were received over a 4-week period in 2010. The authors hypothesized that the counseling and demeanor of the pediatric cardiologist (PC) may be important factors in determining whether parents of children with CHD seek second opinions, and that the terminology used in counseling may be variably interpreted. Of the 841 respondents, 349 (41A %) received the diagnosis prenatally. A minority of the respondents received: support group information (14A %), Internet resources (21A %), success rates at other hospitals (16A %), or maximum ages of survivors (29A %). Among 26A % of the parents who reported seeking a second opinion from another PC, the majority (71A %) chose the second PC for long-term follow-up care. Those receiving a prenatal diagnosis were more likely to seek a second opinion than those receiving the diagnosis postnatally (32 vs 22A %; pA pA pA pA =A 0.026). The approach to counseling and the demeanor of the PC have important implications for parentsa perceptions of their childa s chance of survival. The information given at diagnosis, the manner in which it is presented, and the parentsa understanding and interpretation of that information are critical factors in shaping parentsa perceptions and management decisions.

US$29.90


Other references

Vandecatseye, L., 1983: Eggs and consumers. The study examines factors which have influenced sales of eggs in Belgium in recent years and is part of a study of food consumption organized by the Belgian Institute of Agricultural Economics. The increasing demand for eggs has been a function o...

Tjan-Heijnen, V.C.G.; Hermus, A.R.M.M.; Kemink, S.A.G.; Mudde, A.H.; Pieters, G.F.F.M.; Smals, A.G.H.; Kloppenborg, P.W.C., 1998: Preclinical Cushing's syndrome in patients with an adrenal incidentaloma. Background: Autonomous (hyper-)secretion of cortisol without classical stigmata of Cushing's syndrome occurs in 10-15% of patients with incidentally detected adrenal tumors (incidentalomas). Methods: We present the clinical and biochemical da...

Thompson, P.J., 1998: Unique role of allergens and the epithelium in asthma. The respiratory epithelium has been regarded as an inert barrier separating the human airway from the external world. Equally allergens have been perceived to be environmental proteins which interact with immunocompetent cells, activate inflammato...

Leuzinger, Hans., 1992: The Agel Lake near Frauenfeld Der Agelsee bei Frauenfeld. Ornis. August; 4: 10-11

Renard, J.F.; Compere, R.; Mathieu, L.; Alliou, T.D., 1981: Woodland savannas of the Gouan valley in the Republic of Guinea. 1. Several aspects of soil-plant relations. The physical characteristics of the woodland savanna region are briefly described and the area divided into 4 main morphological units. The strong relationship between OM contents of upper soil horizons, soil fertility and structure of plant commu...

Nedbal, J.; Kudrmann, J.; Maratka, Z., 1969: Changes in the clinical features of ulcerative colitis during the last decade. Vnitrni Lekarstvi 15(12): 1183-1187

Meinke, M.; Müller, G.; Helfmann, Jürgen.; Friebel, M., 2007: Empirical model functions to calculate hematocrit-dependent optical properties of human blood. The absorption coefficient, scattering coefficient, and effective scattering phase function of human red blood cells (RBCs) in saline solution were determined for eight different hematocrits (Hcts) between 0.84% and 42.1% in the wavelength range o...

Furuta, A.; Salam, K.Abdus.; Tani, H.; Tsuneda, S.; Sekiguchi, Y.; Akimitsu, N.; Noda, N., 2015: A fluorescence-based screening assay for identification of hepatitis C virus NS3 helicase inhibitors and characterization of their inhibitory mechanism. Hepatitis C virus (HCV) can establish a chronic infection in the majority of individuals infected, resulting in liver cirrhosis and hepatocellular carcinoma. Because the current standard treatment for HCV infection has limitations in terms of seve...

Williams, M.R.; Duncan, G.; Riach, R.A.; Webb, S.F., 1994: Cholinergic and adrenergic receptors coupled to Ca-2+ mobilisation in human lens cells. Investigative Ophthalmology & Visual Science 35(4): 1551

Huang, D-Yin.; Guan, S-Li.; Bo, Y-Li., 2007: Assessment on occupational health risk. Zhonghua Lao Dong Wei Sheng Zhi Ye Bing Za Zhi 25(8): 512-513