+ Resolve Article
+ Follow Us
Follow on FacebookFollow on Facebook
Follow on TwitterFollow on Twitter

+ Translate
+ Subscribe to Site Feed
GeoScience Most Shared ContentMost Shared Content

Measuring the impact of burn scarring on health-related quality of life: Development and preliminary content validation of the Brisbane Burn Scar Impact Profile (BBSIP) for children and adults

, : Measuring the impact of burn scarring on health-related quality of life: Development and preliminary content validation of the Brisbane Burn Scar Impact Profile (BBSIP) for children and adults. Burns 41(7): 1405-1419

No burn-scar specific, health-related quality of life (HRQOL) measure exists. This study aimed to develop a patient-reported, evaluative HRQOL measure to assess the impact of burn scarring in children and adults. Semi-structured interviews, content validation surveys, and cognitive interviews were used to develop and test content validity of a new measure - the Brisbane Burn Scar Impact Profile (BBSIP). Participants comprised Australian adults (n=23) and children (n=19) with burn scarring; caregivers of children with burn scarring (n=28); and international scar management experts (n=14). Items distinct from other burn scar measures emerged. Four versions of the BBSIP were developed; one for children aged 8-18 years, one for adults, one for caregivers (as proxies for children aged less than 8-years), and one for caregivers of children aged 8-18 years. Preliminary content validity of the BBSIP was supported. Final items covered physical and sensory symptoms; emotional reactions; impact on social functioning and daily activities; impact of treatment; and environmental factors. The BBSIP was developed to assess burn-scar specific HRQOL and will be available at under a creative commons license. Further testing is underway.


PMID: 26421693

DOI: 10.1016/j.burns.2015.05.021

Other references

Phillips, R.D.; Christeck, R.; Phillips, R.L., 1985: Clinical measurement of the axis of the subtalar joint. Journal of the American Podiatric Medical Association 75(3): 119-131

Burke, M., 1994: Motor vehicle injury prevention for older adults. Older adults account for more than 20% of the driving population in the United States today and their numbers are increasing. The risk for traffic injury increases significantly for people over 70 years of age. The reasons for the increase in risk...

Halperin, O.; Sarid, O.; Cwikel, J., 2016: The influence of childbirth experiences on women׳s postpartum traumatic stress symptoms: A comparison between Israeli Jewish and Arab women. childbirth is a positive experience for most women yet some women express distress after birth. Traumatic experience can sometimes cause post-traumatic stress disorder (PTSD) in relation to childbirth. Prevalence of traumatic birth experience and...

Kielar, A.; Deschamps, T.; Jokel, R.; Meltzer, J.A., 2016: Functional reorganization of language networks for semantics and syntax in chronic stroke: Evidence from MEG. Using magnetoencephalography, we investigated the potential of perilesional and contralesional activity to support language recovery in patients with poststroke aphasia. In healthy young controls, left-lateralized ventral frontotemporal regions re...

Takahashi, K.; Tasaka, H.; Hasegawa, Y., 1995: Sensitivity and specificity for detection of islet cell cytoplasmic antibodies using rat pancreatic sections. We determined islet cell cytoplasmic antibodies (ICA) using rat pancreatic sections as a test substrate substitutive for human pancreatic sections by indirect immunofluorescent technique. ICA were measured in sera from 58 patients with insulin-dep...

Braun-Fischer, A.; Romeike, B.F.; Eymann, R.; Glas, B.; Riesinger, P.; Reiche, W., 1998: Pilocytic astrocytoma with subarachnoid dissemination. Pilocytic Astrocytomas (WHO I) are histopathologically tumors of glial origin occurring predominantly in childhood and adolescence. Normally, they are characterized by a benign clinical course, with a long overall survival time and a high rate of...

Kuresoo, A.; Ader, A., 2000: The point counts of breeding land birds in Estonia, 1983-1998 Haudelindude punktloendus Eestis aastail 1983-1998. Hirundo, 131: 3-18

Nyatanga, B., 2014: Extending virtual wards to palliative care delivered in the community. British Journal of Community Nursing 19(7): 328-329

Feifer, A.; Corcos, J., 2008: Contemporary role of suprapubic cystostomy in treatment of neuropathic bladder dysfunction in spinal cord injured patients. The management of neuropathic bladder dysfunction secondary to spinal cord injury is controversial. With the introduction of clean intermittent catheterization (CIC) and anti-cholinergic medication, urinary tract deterioration in this population h...

Lampman, M.K., 1975: The Alaska pipeline. Hospital Forum 18(5): 4-7